No diagnosis chronic pain

Posted by liv1020 @liv1020, May 7, 2020

Hi everyone I'm new here. I would love some advice/comments on what I've been dealing with for around four months. It's a long story thankyou if you read and respond.
Around the end of January I started getting intense burning pain on the top of my legs and middle of abdomen. No rash or Marks on the skin just intense pain. I tried ibuforen, lidocaine gel, advil tylenol nothing helped. Started with primary care doctor she said to use lidocaine gel and ordered blood test. Blood test results all fine except for slightly low vitamin d deficiency. She said to start vitamin d pill I have been for months levels gone up and no relief in pain. Then went to pain clinic they did cortisone injections directly to abdomen. The injections gave me a horrible reaction that I ended up in the er for. Started on predisone and benadryl for 10 days. Once allergic reaction was gone same exact pain. They started me on lyrica made pain worse. I went to a dermatologist who said that it had to be nerve pain bc theres no rash on the skin she said to go to a neurologist. I went to him he did blood test ct scan and everything normal. I'm at a loss 🙁 I've been on lyrica, gabapentin, tropokendi, cbd cream from neurologist, acupuncture/herbs, chiropractor and laser treatment, muscle relaxer and tramadol. I'm not on any medications right now everything seems to make it worse. And creams I put on my skin break it out horribly. I'm at a loss and so miserable. This is such a mystery and no doctors can help me. I want my life back 🙁 !!!

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@rwinney

Super! Every Neurologist is not built the same, as you may have heard already through this forum. They each have different levels of expertise and knowledge. Did your current neurologist offer you a skin punch biopsy?

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@rwinney No, my neurologist never did that for me.....I will ask Neurologist at Mayo, though, to do a muscle biopsy as I really need to rule out ALS.

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@mrea

@rwinney No, my neurologist never did that for me.....I will ask Neurologist at Mayo, though, to do a muscle biopsy as I really need to rule out ALS.

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@mrea Yes and you will be in good hands at Mayo.👍🏼

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