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@msgtrebholtz Jason, I'm glad that you were able to get top quality care. I also appreciate your attitude towards healing and recovery, and the support you offer to other members.
If you didn't at the time, you might consider contacting the Office of Patient Experience at Mayo Clinic to tell them about your experience. In fact, I encourage you to do so. @martft4 I might encourage you to do the same, especially if you are still receiving care at Mayo Clinic. I know this will sound glib, but the Office of Patient Experience is there for exactly these types of situations, to mediate and improve patient services and care.
Office of Patient Experience
https://www.mayoclinic.org/about-mayo-clinic/patient-experience
Scottsdale or Phoenix campus 480-342-2651
Jacksonville campus 904-953-2019
Rochester, Minnesota, campus 507-284-4988
Mayo Clinic Health System (includes MN, WI and IA campuses) 844-544-0036
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Hi Colleen,
We did go see that office.
We spoke to the staff there and they suggested we stay to get all the care an follow up that was scheduled. I explained that if we were told beforehand about the extent of my visits I might consider it, but they didn't.
I also told them that I would be willing to reschedule this when I could work it out with my boss to be there that many days. In the time that it took to attempt to set these things in motion I was also working to find different arrangements, which I did. It turned out well since the U is about half as far from home and it all worked out in the end.
I do still see Dr Poterucha at Mayo Rochester and at Centracare to collect data for his PSC surveillance group / study.