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12/30/2020: I am editing this post, and a couple after this - After reading them over I felt no need to rehash any memories about past treatment so I am deleting some comments and focusing on the positive.
I went to see a surgeon at University of Minnesota Medical Center, who was amazing. She told me exactly what was going to happen, and also broke it to me that there so little chance that a J pouch would work for me that I should just flush that thought right out of my head (I may be paraphrasing there! LOL).
She asked if I had any questions, but all I had was a request. If at all possible to do the surgery without cutting me wide open. She said she would do her best. Turns out my colon was being strangled by fat and connective tissue all the way and she ended up cutting my colon out about a 1/2" at a time. My 2 1/2 hour surgery took about 11 hours, but she kept her word and I only have a couple of small scars. She and her staff worked hard to take care of me as well as I think it could have been done.
Replies to "12/30/2020: I am editing this post, and a couple after this - After reading them over..."
@msgtrebholtz Jason, I'm glad that you were able to get top quality care. I also appreciate your attitude towards healing and recovery, and the support you offer to other members.
If you didn't at the time, you might consider contacting the Office of Patient Experience at Mayo Clinic to tell them about your experience. In fact, I encourage you to do so. @martft4 I might encourage you to do the same, especially if you are still receiving care at Mayo Clinic. I know this will sound glib, but the Office of Patient Experience is there for exactly these types of situations, to mediate and improve patient services and care.
Office of Patient Experience
https://www.mayoclinic.org/about-mayo-clinic/patient-experience
Scottsdale or Phoenix campus 480-342-2651
Jacksonville campus 904-953-2019
Rochester, Minnesota, campus 507-284-4988
Mayo Clinic Health System (includes MN, WI and IA campuses) 844-544-0036
@msgtrebholtz Hi Jason. I do not often participate in this particular subject, but please let me welcome you, albeit a bit late. I used to participate a bit here because I thought I might have IBS but it turned out to be lactose intolerance.
I am so sorry to hear about your disappointment with Mayo. Most people love it, of course, it is ranked as the #1 hospital in the country, followed in the #2 place by my hospital of choice, Mass General in Boston which I love. I live in southern NH so that made the choice very easy. I think that every hospital, no matter how good, can have a doctor or two who may not be as patient oriented as most patients would like. My doctors at MGH are all very compassionate as I am sure the majority of doctors at Mayo are also.
The important thing is that you did find a great surgeon who gave you exactly what you needed and now you are feeling much better and the IBS is behind you. I hope you continue to do well.
JK
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Wow
That was incredibly rude!
You did the right thing by walking out! I would of also.
My daughter would of tore him a new one and left behind me. My thing was they didn’t even discuss anything about my gastroparesis.
I was on laxatives for it and not even taking them everyday so it was a pelvic floor dysfunction for me and so recommended therapy which insurance didn’t cover. Everything that was recommended for me not covered by insurance.
First was the therapy and second was a reflux band and third was some kind of injection that I would have to do daily and expensive as hell.