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High or Fluctuating Chromogranin A Level: What does it mean?

Neuroendocrine Tumors (NETs) | Last Active: Jun 18 3:39pm | Replies (184)
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@musicflowers4u

Dana Farber in Boston has the Gallium 68 Dotatate
PET scan. My Chromagranin tests have all been high. Right after surgery in the 900s. Last few have varied between 400s-600s. Scans clear. Oncologist not concerned about high Chromagranin as I have been on Omeprazole for a long time (have tried unsuccessfully a few times to get off it).

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Replies to "Dana Farber in Boston has the Gallium 68 Dotatate PET scan. My Chromagranin tests have all..."
debona2113 | @debona2113 | Jul 11, 2023

How high is too high for Chromogranin A? Mine was 2590 and urine 5-HIAA, somatostatin level elevated. Nuclear PET and Octreo scan both show possible tumors, curve (uncinate) of pancreas, abdomen and pelvis. LDCT lung scan for smoker shows 6-7 < m nodules in both lung bases. All of the sudden an MRI is done and everything seen on scans is no more? Which tests are lying. It all started with 40 pound wgt loss, diarrhea, cramps, left/right upper abd pain around to mid back, nausea and vomiting bile, headaches, mid back pain ALL since 1-2023.

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