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Have you tried the new Protocol 525 product for neuropathy relief?
Neuropathy | Last Active: Apr 22 7:23am | Replies (294)Comment receiving replies
Thanks for the info about the protocol, @johnbishop.
You've reported that since starting the protocol. you think your symptoms have leveled off, and may have begun to get better (new feelings in your feet).
Since you have SFP, and therefore an anatomic deficit which can be proven with a biopsy, have you ever considered getting another biopsy done, which may show an increase in nerve fibers, and therefore confirm your subjective feelings.
As you know, this disease is particularly difficult to manage, in part because symptoms are the result of so many variables, including mood. It would be wonderful to be able to demonstrate improvement based on an objective test.
What do you think?
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Hi Jeff @jeffrapp, I had thought about getting retested for my neuropathy but did not follow through. My Mayo neurologist didn't use a punch biopsy for my diagnosis. I had a couple of EMGs and some labs along with a physical exam when he diagnosed me with idiopathic small fiber PN. I did think about seeing if I could get another EMG to see if there was some difference but it's a matter of paying for the tests and getting one scheduled so I haven't pursued it anymore. I agree that it would confirm my subjective feelings quite a lot if the test confirmed improvement. After this COVID-19 situation improves I may talk to my primary care doc to see if I could schedule something that would be covered by my insurance. I missed my annual exam due to COVID so will add it to my list of questions for my doctor. Thanks for the suggestion!