Hi @gusdaisy, welcome to Mayo Clinic Connect, an online community where people can share experiences and ask each other questions about any health issue. We're not medical professionals who can offer medical advice. I'm tagging fellow members @pammiesue51 @bernese53 and @safetyshield who have experience with spina bifida. In fact, SafetyShield started a similar discussion a while back that might interest you here:
- Swollen foot https://connect.mayoclinic.org/discussion/swollen-foot/

You may also be interested in this video Q&A with Mayo experts Dr. Angela Mattke, Dr. William Shaughnessy and Dr. Sheri Driscoll.
- Video Q&A about Spina Bifida https://connect.mayoclinic.org/webinar/video-qa-about-spina-bifida/

Gus, is this the first time that she has experienced this type of swelling? Are you able to contact her pediatrician?