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Damage to legs from Henoch-Schonlein purpura? Stumped the doctors
Autoimmune Diseases | Last Active: Feb 7 8:21pm | Replies (47)Comment receiving replies
Hi @jsimmons74 If you would like to make an appointment at Mayo Clinic, please call one of our appointment offices. You can also request an appointment online. The contact information for Minnesota, Arizona and Florida can be found here: http://mayocl.in/1mtmR63 Coordinators will ask questions to help direct you to the best specialist for your son.
Replies to "Hi @jsimmons74 If you would like to make an appointment at Mayo Clinic, please call one..."
So they called and got his information, I just have to hope they take him on. I liked the first person I talked to, but the next person I don’t feel like I really got to explain how bad it was. I did let her know we have been to 5 dr between Lurie’s and Northwest with no answers. But she asked how much school he has missed (none) and if he is anxious and depressed (no). Hope that doesn’t hinder his ability to be seen. The rheumatologist we saw the other day thinks it could be “Mays-Thurner” syndrome where a vein may be in a funny position in his leg getting “kinked”. Hoping to hear back next week about a standing MRI. If not praying Mayo will take him on as a patient. I did email his PC to see if he would do a referral for Mayo hoping that would help. Ugh the waiting.
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TY I will do that today. I really thought between northwestern and Lurie’s Children’s Hospital we would have gotten an answer. They all agree something is going on but no one knows what!