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@jsimmons74

Thank you for the information. All of his tests so far have been related to the valves in the veins, but now that they have ruled that out maybe the will move on to other testing once we get to see the Rheumatologist. He handles it pretty well most of the time because the pain subsides when he lays down. It doesn’t hurt when he moves so that is a blessing. He is able to walk the dog for some exercise and mow the yard. When it does flair up he gets so angry and frustrated. Now that it bothers him when he is practicing tuba he gets very angry bc it is the one thing he loves doing. Holding out they do not cancel our appt at the end of the month, but I am going to call today and make sure bc it has definitely gotten worse.

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Replies to "Thank you for the information. All of his tests so far have been related to the..."

@jsimmons74 Hello, I’m wondering how your son is doing. Have you been able to talk with anyone yet?

I feel so bad for your son what he has to endure everyday. As his Mom I’m sure it’s not easy on you. It must be taking a toll on you and family. Stay strong💪🏼 Isn’t there other doctors you can get in touch with outside of your area? Prayers a cure is found for your son. Stay strong, keep the faith. prayers for you and your son 🫶🙏