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DiscussionDamage to legs from Henoch-Schonlein purpura? Stumped the doctors
Autoimmune Diseases | Last Active: Feb 7 8:21pm | Replies (47)Comment receiving replies
Replies to "@jsimmons74 - It is very helpful to see the different photos. Your son must really suffer-..."
Thank you for the information. All of his tests so far have been related to the valves in the veins, but now that they have ruled that out maybe the will move on to other testing once we get to see the Rheumatologist. He handles it pretty well most of the time because the pain subsides when he lays down. It doesn’t hurt when he moves so that is a blessing. He is able to walk the dog for some exercise and mow the yard. When it does flair up he gets so angry and frustrated. Now that it bothers him when he is practicing tuba he gets very angry bc it is the one thing he loves doing. Holding out they do not cancel our appt at the end of the month, but I am going to call today and make sure bc it has definitely gotten worse.