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@astaingegerdm

@jsimmons74 - It is very helpful to see the different photos. Your son must really suffer- the photos of the below knee angry red ,raised inflamed skin were almost shocking in the degree of inflammation. It does look like vasculitis, especially also with pain. I assume this is a continuation of the HSP vasculitis, but different. There is another painful nodular inflammation of the the lower extremities called erythema nodosum.
It seems as if he would need to have a skin biopsy to see what actually is going on under the skin surface. I hope with a diagnosis he can be treated with anti- inflammatory or anti- immune medication. He did respond to prednisone. I have just written down my thoughts here -I have dealt with different autoimmune conditions. Hope you can get to see someone soon. The photos are very helpful. Please stay in touch!

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Thank you for the information. All of his tests so far have been related to the valves in the veins, but now that they have ruled that out maybe the will move on to other testing once we get to see the Rheumatologist. He handles it pretty well most of the time because the pain subsides when he lays down. It doesn’t hurt when he moves so that is a blessing. He is able to walk the dog for some exercise and mow the yard. When it does flair up he gets so angry and frustrated. Now that it bothers him when he is practicing tuba he gets very angry bc it is the one thing he loves doing. Holding out they do not cancel our appt at the end of the month, but I am going to call today and make sure bc it has definitely gotten worse.