← Return to Damage to legs from Henoch-Schonlein purpura? Stumped the doctors

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@colleenyoung

@jsimmons74, I'd also like to add my welcome. COVID-19 is proving to be a big disruptor, especially for people dealing with managing chronic issues or not yet diagnosed issues. I'd like to tag other member who have experience with Henoch-Schönlein Purpura (HSP) also known as IgA vasculitis (IgAV) to help out as you wait for appointment. @astaingegerdm @ralph97 @anet may have some experience to share with you and your son.

JSimmons, I'm sure you know about the Vasculitis Foundation, but just in case you haven't this may prove to be useful information for you - IgA vasculitis https://www.vasculitisfoundation.org/education/forms/henoch-schonlein-purpura/

It is frustrating that you can't get an appointment at Lurie Children's because your son hasn't been seen there yet and COVID has reduced new patient appointments. Have you considered contacting Vanderbilt where he has seen a rheumatologist and asking if they offer video consults. I know Mayo Clinic is doing this for patients. It might be worth a try.

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Replies to "@jsimmons74, I'd also like to add my welcome. COVID-19 is proving to be a big disruptor,..."

I did find a few things on that site that I wasn’t aware of. Thank you. Hopefully others on here will have some ideas as well to get through this while we wait for an appt.