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Damage to legs from Henoch-Schonlein purpura? Stumped the doctors
Autoimmune Diseases | Last Active: Feb 7 8:21pm | Replies (47)Comment receiving replies
Good morning @jsimmons74 I used google scholar to find some other articles on HSP. They may be difficult to read because of scientific words. You might want to keep a notebook following all of your son’s symptoms. Especially keep an eye on his breathing. Any dramatic changes would warrant a trip to the ER even in times of Covid-19. He should also wear a mask when/if he goes out.
https://www.researchgate.net/profile/Thomas_Waller/publication/6127285_Henoch-Schonlein_Purpura_A_Review_Article/links/5b7ebd684585151fd12a361e/Henoch-Schoenlein-Purpura-A-Review-Article.pdf
Can the doctors you originally saw give you a referral to a rheumatologist? Are any of the rheumatology offices in your town open for you to get an appointment? This must be so hard for you, but you are doing the right thing by advocating for your son.
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Thank you for the article. I did have to look up a few words, but learned a few things. I am going to call the Lurie’s rheumatologist that he has an appointment with and make sure they are still going to see him in a few weeks since it has definitely happening more frequently and the pain is higher on the scale then it was. The good news is, it doesn’t flair up when he moves - he likes to mow the yard for “something to do” I definitely understand he is high risk so I haven’t allowed him to go anywhere (except to take dog on a walk around the block and our yard) He hasn’t seen any of his friends since March 11 when the closed school - this time is so challenging on the kids ;(
Praying they will still see him, so we can get him some relief.