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Damage to legs from Henoch-Schonlein purpura? Stumped the doctors
Autoimmune Diseases | Last Active: Feb 7 8:21pm | Replies (47)Comment receiving replies
Good morning @jsimmons74 and welcome to Connect. I’m so sorry you and your son are having to deal with this. You might find the information on this site for Mayo Clinic helpful. Did the prednisone help your son at all? Who gave your son the HSP diagnosis? Have you been able to contact the rheumatologist at Lurie to tell them that symptoms have gotten worse and that it’s affecting his breathing? Please call and then let me know what you find out.
https://www.mayoclinic.org/diseases-conditions/henoch-schonlein-purpura/symptoms-causes/syc-20354040
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The prednisone helped until it was out of his system. I can’t get anyone to return our call because he hasn’t been seen yet. They will only see him sooner if it gets so bad he goes to the ER which right now we are definitely not doing bc of Covid19. I would love some ideas of things to read up on. I can’t find anything that fits his symptoms. Each dr says they are stumped and refer us on. I just want to make sure “waiting” isn’t casing more damage since it seems to be getting worse the last 2 months. The HSP was given in Chattanooga PC and the also by Vanderbilt Rheumatologist. That was 2018. Since then it has just been this strange pain and discoloration in his legs when he stands.