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Central Sensitization - please share your stories

Chronic Pain | Last Active: Dec 20, 2023 | Replies (159)

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@rwinney

@dk21 I'm happy to hear from you. I'm sorry for your diagnosis and your life changes. It's very difficult to handle. I feel exactly the same as you. Unacceptance means one of two things...either we will go against the grain by not accepting and most likely make our pain worse, or unacceptance will motivate us to look for answers, rehab, supplements and work very hard.I am a very impatient person and have been having a hard time realizing this is what I have and who I am now. I've been working hard on being in the moment and finding a positive outlook as I know that can reap benefits. My physical therapist performs myofacial release on my full body. I'm on Medicare so can only go once a week in order to stretch coverage through the year but, its not enough because he can only work on one area each week. It has been helpful and I recommend it. I will be going to Mayo Rehab in Oct and hope to learn how best to physically work my body given my conditions. Then I hope to have a plan for my PT to follow which will include occupational and physical therapy.

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Replies to "@dk21 I'm happy to hear from you. I'm sorry for your diagnosis and your life changes...."

@migizii I will look forward to hear about your experiences. As some of us have mentioned, being diagnosed with fibromyalgia has been difficult and any/all suggestions I find very helpful. It took me a good deal of time to find understanding that this was really true for me, but I did finally learn to accept it more. However, that means accepting the ups and downs of this chronic condition and everything that goes with it. One day or one part of a day at a time. I can enjoy what I can and let the other moments pass through as best as I can. Take care❤️