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Central Sensitization - please share your stories

Chronic Pain | Last Active: Dec 20, 2023 | Replies (159)

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@dk21

Hi Rachel & Renee-
Thank you for your posts. I’ve been searching for answers for over a year. I was recently diagnosed with Fibromyalgia & Chronic Fatigue Syndrome. I am having a hard time accepting that. I want my old life back. I want to heal and do so quickly. Instead things are only getting worse. I fear I haven’t hit rock bottom yet. Reading your posts helps me feel less alone.
Can I ask, Rachel, what does your physical therapist do specifically? Is it exercises?

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Replies to "Hi Rachel & Renee- Thank you for your posts. I’ve been searching for answers for over..."

@dk21 I'm happy to hear from you. I'm sorry for your diagnosis and your life changes. It's very difficult to handle. I feel exactly the same as you. Unacceptance means one of two things...either we will go against the grain by not accepting and most likely make our pain worse, or unacceptance will motivate us to look for answers, rehab, supplements and work very hard.I am a very impatient person and have been having a hard time realizing this is what I have and who I am now. I've been working hard on being in the moment and finding a positive outlook as I know that can reap benefits. My physical therapist performs myofacial release on my full body. I'm on Medicare so can only go once a week in order to stretch coverage through the year but, its not enough because he can only work on one area each week. It has been helpful and I recommend it. I will be going to Mayo Rehab in Oct and hope to learn how best to physically work my body given my conditions. Then I hope to have a plan for my PT to follow which will include occupational and physical therapy.

@dk21 You might want to get Dr. Greg Fors book “why we hurt and how we heal”. He talks about fibromyalgia and also trigger point therapy. He also discussed the tie in with gut health and fibromyalgia. I highly recommend this book.

I'm not sure how old you or others are in this discussion but, one things for sure with me in "wanting my old life back", is the fact that I've been disabled since age 46, am now 50 and I desperately want to be able to be an involved, active grandparent!! That matters most to me. My son's wedding should have been TODAY but will be next year because of Covid. I want grandbabies and it really makes me mad and breaks my heart that my malfunctions create me to be a whole new person and live an entirely different life that is extremely limited. Ughh...sorry, had to get that pity party out.

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Hello @dk007 and @cldmeyers how have you each been doing? It's been a while since we've spoke.

@dk21 How have you been working on accepting your diagnosis of Fibromyalgia and chronic fatigue syndrome? What are you doing to calm your body and your mind?

@cldmeyers Are you still able to walk every other day? What new techniques are you using to deal with your chronic pain syndrome?

I graduated Mayo Pain Rehab Center (PRC) last year and have come to accept my central sensitization chronic pain.. I mourned the loss of my A life (ready and able to do anything), said good riddance to my B life (non-accepting, searching, unstable), and welcomed my C Life (stable, moderate, flexible).

I look forward to hearing from you and hope you are living your best possible C Life.