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Central Sensitization - please share your stories

Chronic Pain | Last Active: Dec 20, 2023 | Replies (159)

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@tara333

Hi tony,
It’s been a mixture of different pain medications and muscle relaxants. It’s all been trial and error to see what helps and at the moment the medications don’t seem to be helping that much but my doctor isn’t going to change them until we hear back from the pain clinic. Another way I’m managing is trying to get a routine down of daily activities even the smallest things like brushing my hair and teeth. Trying to focus on things outside of my pain (it’s quite hard) such as reading or writing. A lot of doctors put my pain down to mental health issues so even though I always fought to say no I know that’s not the main reason I have started to see a therapist and start a good mental health plan. So really I’ve not been doing anything to help the pain it’s more so what can I do to distract myself from the pain as long as possible. It gets quite hard though when i put the pain off for so long and then I go three to four days of intense pain.
I also want to mention a few months back I broke my ankle and ended up Surgery to fix it. Now a normal person would of bounced back from that now but I am still in the same pain I was when I was recovering so even though my ankle is healed my body is still treating it as if it is broken. I also had two spinal taps when I was in hospital earlier this year and they did then so incorrectly that I now have terrible nerve pain down my legs and pain in my lower back. Due to my central sensitisation these two instances are now Incredulity more painful for me than someone who doesn’t have central sensitisation.

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Replies to "Hi tony, It’s been a mixture of different pain medications and muscle relaxants. It’s all been..."

@tara333 I'm real sorry to hear of your pain and frustrations. So much of what you say resonates with me. It's wild. I concur on the psychological impact chronic pain has, then you mix it in with why is this affecting me this way. It does not seem normal or like others.

I, like you, spend alot of time focusing on mindfulness and meditation to help escape my pain. Sometimes, it's all I have left after maxing out all other options like medications, procedures that dont work. I'm also interested in hearing how your pain clinic plans on treating you. My findings and what Mayo's Pain Rehabilitation program indicate, are an all hands on deck approach with physical and occupational therapy, cognitive behavioral therapy (retraining the brain), psychology, medication overhaul, etc...A plan to desensitize. I will eventually enter this program for 3 weeks and hope for the best.

Thank you again for reaching out and sharing your experience.
Rachel

Wow. That's quite the string of hard circumstances you've had @tara333 with a broken ankle and two rough spinal taps. I'm sorry you've had to endure it. You certainly are in good company here with dealing with chronic pain (especially around Central Sensitization) and perhaps @rwinney, @richman54660, @lorirenee1, @bonnieh218, and others can help give you some tips beyond meds that have worked for them for pain while you wait to hear back from the pain clinic.