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Central Sensitization - please share your stories

Chronic Pain | Last Active: Dec 20, 2023 | Replies (159)

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@TonyHart87

Welcome to Connect @tara333! I'm so glad you found some comfort and answers. It's definitely helpful to have a name for what you are going through and now it sounds like you are doing a great job with doing continued research on it. Please do report back when you get a plan from the pain clinic too. How have you been treating your pain before your diagnosis?

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Replies to "Welcome to Connect @tara333! I'm so glad you found some comfort and answers. It's definitely helpful..."

Hi tony,
It’s been a mixture of different pain medications and muscle relaxants. It’s all been trial and error to see what helps and at the moment the medications don’t seem to be helping that much but my doctor isn’t going to change them until we hear back from the pain clinic. Another way I’m managing is trying to get a routine down of daily activities even the smallest things like brushing my hair and teeth. Trying to focus on things outside of my pain (it’s quite hard) such as reading or writing. A lot of doctors put my pain down to mental health issues so even though I always fought to say no I know that’s not the main reason I have started to see a therapist and start a good mental health plan. So really I’ve not been doing anything to help the pain it’s more so what can I do to distract myself from the pain as long as possible. It gets quite hard though when i put the pain off for so long and then I go three to four days of intense pain.
I also want to mention a few months back I broke my ankle and ended up Surgery to fix it. Now a normal person would of bounced back from that now but I am still in the same pain I was when I was recovering so even though my ankle is healed my body is still treating it as if it is broken. I also had two spinal taps when I was in hospital earlier this year and they did then so incorrectly that I now have terrible nerve pain down my legs and pain in my lower back. Due to my central sensitisation these two instances are now Incredulity more painful for me than someone who doesn’t have central sensitisation.