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Central Sensitization - please share your stories

Chronic Pain | Last Active: Nov 18 3:37pm | Replies (160)

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@richman54660

@rwinney There is some possible help for neuropathy. There is a Facebook group called "the protocol works" and "the protocol 525" (newer version). You have to dig a bit, but you can find their exact protocol and with the 525 they ship it to you. It involves lots of supplements and minerals and LOTS of healthy fats (nerves like healthy fats). In my two years of chronic myofascial pain, I had developed.my own protocol with all supplements (lots of different flavinoids (ORAC green energy), and many supplment flavinoids and higher Vitamin C (<2000 mg/day split up with meals), etc., and hemp seed oil, and turmeric, milk thistle extract, ginger, etc.. These definitely helped my neuropathic and sciatica pain. However, some of my symptoms match up with a neuropathy, too. That's the really short version of my supplment program- but the supplements I use have really cut my pain. So did doing the TRX core suspension exercises and some Pilates reformer exercises (I have bulges, stenosis), etc. too but all my pain including nerve pain is from tight muscles clamping on nerves. Sltrengthening and working particular muscles greatly helped my pain.. As long as I stretch, exercise and take my supplements I’m pain free. It cut my pain and I'm no longer on antidepressants for nerve pain. When the pain goes down, the centralization issue may go down (one would hope it did for me, to a large extent; The pain monster takes on a life of its own). Some good books about pain are: "life after pain" by Dr. Jonathan Kuttner (who discusses centralization; he has some programs that deal with this online). "Life after pain" is a $10.00 book and easy to read. However, you'd have to buy some of his other stuff to really get the treatment detail - but some is affordable and online. Also, Dr. Greg Fors, "Why we hurt and how we heal". He discusses a lot and speaks about diet a lot in his book. So, all that being said, have you (and anyone else) looked at your diet? Add lots of green stuff - including supplements. Be sure to monitor blood pressure on supplements as they can alter it. Also, research the doses you need and don't over do those, either.

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Replies to "@rwinney There is some possible help for neuropathy. There is a Facebook group called "the protocol..."

@richman54660 Hi and thank you so much for your informative reply. I have followed the Facebook neuropathy protocol for over 6 months and feel that it has helped. I add turmeric and CoQ10. I pay attention to my food and know I have room for improvement. I work my body by stretching and as much movement as possible. I have myofacial treatments weekly but just not enough to deal with my whole body. Working on beginning physical/occupational therapy to learn how best to use my muscles for a favorable outcome. I'm also accepted to Mayo's pain rehab program and am pending scheduling (Covid). I hope to gain ample knowledge and direction while there to better my existence Thank you for the book references. I've jotted down and will get to reading. You're a great asset and very much appreciated. I believe all of what you've said and agree that it makes a ton of sense...need to keep applying. Thanks again and take care. It sounds like you are doing a fantastic job!
Rachel

Also, I'm curious...did you have pain and debilitation after myofacial release therapy? I've been going weekly since last July and the day (or hours) after, I'm 10x worse. The area worked on flares beyond normal pain. This happens with use of my body as well and believe me, I push, push, push and keep moving despite pain because I keep thinking I will reap the benefits eventually. That's how I'm wired, I never give up. Regardless of my continual striving to break the intense outcome to my body, I seem to remain the same. This is why I feel I need a professional team to assess and assist me.