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Central Sensitization - please share your stories

Chronic Pain | Last Active: Dec 20, 2023 | Replies (159)

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@rwinney

@lorirenee1 Hello. Just wanted you to know that I woke this morning and 2 things popped into my mind...

1. your post from yesterday, which I found very real and honest, and will screen shot for future reference

2. yesterday, I called my PT and he agreed to see me today out of necessity

I have some hope for the day and that is refreshing. Day by day we go...I wish you a day of comforting thoughts, peace and love.

Thanks again for being so kind and supportive. I appreciate you.
Rachel

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Replies to "@lorirenee1 Hello. Just wanted you to know that I woke this morning and 2 things popped..."

@rwinney Hi again, Rachel. Your responses to me made me cry. You have one kind physical therapist to see you today. I hope that somehow, you feel better from going. Yesterday, I was filled with CBD oil and marijuana all day long, reflecting on how bizarre it was, and how I could not imagine ever enjoying marijuana. It does help with pain, and I would be nuts without it, but I am nuts with it, as well. Just trading walnuts, for pistachios, so to speak. This is a perfect example of not being able to just give in, and go with it. Let the river wind as it wishes.....Today, if I wind up needing marijuana all day, I want a different journey. One that just sails peacefully in the waters....that is my goal. I wish you release from pain. I wish you to love yourself, how you are. We all belong to God, in the end...….Lori Renee

I join you ladies in the challenges of daily living with CSS. I had Fibromyalgia for 19 Yrs and one day I escalated to CSS. How lovely 😏! I just completed two wks of IV Ketamine and all it did was block my feet neuropathy. I began to itch from it on the 7th day of ivs. This is bc I’m a mast cell releaser of histamine and possibly Tryptase. (I need further testing to see which one or both). They iv to manage CSS and my food sensitivities is a full time job. God will heal us someday 😀💕