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Central Sensitization - please share your stories
Chronic Pain | Last Active: Dec 20, 2023 | Replies (159)Comment receiving replies
@rwinney From the heart, Rachel; after reading so many of your posts, I know that beyond the severe pain you feel, is the utter lack of acceptance of being sick. Try what you will, you have that spirit that wants to be well. I am there with you. I sometimes think that anything you and I can do to calm our spirit, would be the best for ourselves. We constantly learn, search, read, watch; we make ourselves crazy searching for answers. We want control of our illness. We want an answer. We want a solution. But we exhaust ourselves trying. It's bad enough that the pain is exhausting, but I do think you and I add to the burden with our quest for a solution. With neuropathy, I don't believe there are answers, except maybe, the stimulators that block pain. You learn and study so much, you could probably teach the Mayo clinic class you want to go to. No kidding. So many of us here are on a constant quest. We exhaust ourselves. Be safe and well, Rachel, and everyone.... Lori R
Replies to "@rwinney From the heart, Rachel; after reading so many of your posts, I know that beyond..."
@lorirenee1 Hello. Just wanted you to know that I woke this morning and 2 things popped into my mind...
1. your post from yesterday, which I found very real and honest, and will screen shot for future reference
2. yesterday, I called my PT and he agreed to see me today out of necessity
I have some hope for the day and that is refreshing. Day by day we go...I wish you a day of comforting thoughts, peace and love.
Thanks again for being so kind and supportive. I appreciate you.
Rachel
Hello everyone, you prob have seen my posts on the Fibromyalgia site. I am a retired RN with huge drive to find solutions god what started as Fibro but progressed to CSS aka CPS in 2018. It progressed bc I have ongoing pain from neck nerve damage from minimally invasive bone spur surgery in 2007. And from a botched T2 epidural in 2010. And Occipital Neuralgia on left. I’ve been in pain 22yrs, too long for the brain to just “swing with the punches”. So we are a sector of pain patients in the US who are extremely discouraged that we can’t find a way to get well. Nor can drs find a cure. We all need a miracle from God but we must not get bitter. Our time of healing will come my friends! Please watch The Chosen on Prime Video or on The Chosen App. It’s about the disciples journey with Jesus the 3 Yrs of His ministry on earth, but the Jesus in the film is so wonderful, so relatable to our lives. He was the only person who ever lived who was 200%: 100% man and 100% God. So he felt all the things we humans feel. You will be so comforted, encouraged, so loved and gain so much spiritual understanding. It will carry you away from the pain u feel while sitting on ur sofa and transport you to something far more important.
As far as what therapies I’m using, they are Lyrica, medical Cannabis and a little Clonazapam at bedtime, some Magnesium Malate during the day bc that’s the form of magnesium that calms the nervous system. I have tried every other therapy with no success. Please Google Dr Ginevra Lipton who is a Dr and has Fibro herself. She has dedicated her practice to teaching others all about Fibro and how to eat to help it not aggravate it. She wrote a great manual on it, The Fibro Manual. And recently another book called Fibro Food Formula. Lots of helps thanks to her.
I am 94 pounds some days, 95 other days. due to sarcopenia. I don’t know how much of that is due to Lyrica and how much is due to cortisol staying elevated 24/7/365. Can any of you share anything about the effects of longtime use of Lyrica? TU and walk with God.
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@lorirenee1 I loved your words! Perfect. Thank you for them. Rest well this evening and... may tomorrow bring you happiness. Rachel