Connect
← Return to Central Sensitization - please share your stories
Discussion
Central Sensitization - please share your stories
Chronic Pain | Last Active: Dec 20, 2023 | Replies (159)Comment receiving replies
@lorirenee1 You are spot on. You've done your research! Thank you. As you define it, CPS targets me perfectly but, what the hell do I do about it? I understand the importance of retraining your brain. It makes perfect sense in theory but, i'm not so much a patient person that buys into all of the imagine beaches 24/7 theory. I can do that and I do, in intervals but, That omits whatever normal life for me at my age. But, beggars cant be choosers, right?
I dont know, it's very confusing and frustrating to me. I am willing and waiting to work with Mayo's pain rehab program where they can teach me or discover new things about me, but it's been months in the making and now on hold since Covid19. Also, being without weekly myofacial has taken a toll. I mildly stretch and try my best to balance use of my body with proper resting. All extremities are failing to worse proportions and am ble to do less and less. I believe it's time for physical and occupational therapy so I can learn how to not cause myself harm. It baffles me. I have alot of fear for my future.
Rachel
Replies to "@lorirenee1 You are spot on. You've done your research! Thank you. As you define it, CPS..."
Has anyone ever tested for small fiber neuropathy it would be a biopsy.
Connect
@rwinney From the heart, Rachel; after reading so many of your posts, I know that beyond the severe pain you feel, is the utter lack of acceptance of being sick. Try what you will, you have that spirit that wants to be well. I am there with you. I sometimes think that anything you and I can do to calm our spirit, would be the best for ourselves. We constantly learn, search, read, watch; we make ourselves crazy searching for answers. We want control of our illness. We want an answer. We want a solution. But we exhaust ourselves trying. It's bad enough that the pain is exhausting, but I do think you and I add to the burden with our quest for a solution. With neuropathy, I don't believe there are answers, except maybe, the stimulators that block pain. You learn and study so much, you could probably teach the Mayo clinic class you want to go to. No kidding. So many of us here are on a constant quest. We exhaust ourselves. Be safe and well, Rachel, and everyone.... Lori R