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@loribmt

@edb1123 Elaine, my goodness, that’s not the news I was expecting. I’m so sorry for that setback with the pneumonia. That had to be beyond scary for you and your family! Early in our transplants when our immune systems are still in the infant stage of developing, we’re so vulnerable and small things can turn nasty in a heartbeat. It’s a relief to hear you’re back on the road to recovery! Are you having any side effects with the Prednisone?

Being off the Tacrolimus will at least allow your new immune system to jump to the rescue from now on! Are you still taking any other meds? When you’re off the Tacro and vaccinated, I think you’ll be able to drop a few of those too! Lucky girl! I’m still on .5mg of Tacro daily, along with the assorted colorful blend of pills and will be for some time yet. Long story there for another time. But I was finally able to go ahead and start my immunizations in October anyway and just had the second round the end of January. One more round to go in April and I’ll be an adult! LOL. Now to get the Covid Vax, but must wait a month after the other vaccinations.

Wishing you all the best on your upcoming BMBX, the CT and the PFT. Please feel free to continue to share your transplant story on Mayo Connect. Truly, there are others in this Community who benefit from the experiences we share. Best, Lori.

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Replies to "@edb1123 Elaine, my goodness, that’s not the news I was expecting. I’m so sorry for that..."

Hi, Lori:

The only side effect I’ve had from the Prednisone is an increased appetite, which was a good thing as I had not felt like eating while I was sick. I take it in the morning so it hasn’t affected my sleep. I am still on anti-fungal, anti-viral, antibiotic medications and another to protect my liver. It sounds like several of these may be discontinued in the next few weeks.

If the biopsy shows any signs of MRD (minimal residual disease), they will probably start shots of Vidaza (chemo) again. I had them in November, right before I got pneumonia. Vidaza has shown to be effective in reducing/eliminating MRD, and my Oncologist may decide to use this to keep the AML from coming back. Hopefully, I won’t need it! 😉

Thanks again for letting me share my story - I hope it is helpful for others.

Elaine