← Return to Anyone had successful stem cell transplant for AML?

Discussion

Anyone had successful stem cell transplant for AML?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 2, 2022 | Replies (163)
Comment receiving replies
@loribmt

@edb1123 Hi Elaine, it’s been a while since we’ve connected. The last posting you were at day +86 and progressing quite well. We transplant ‘babies’ all breathe a little sigh of relief when we reach that mystical, magical Day 100. Now, you must be about 6+ months post BMT. How are you feeling? Any post transplant issues or concerns with eating, energy, GvH? Feel free to share with us how you’re doing. Mayo Connect is a great forum to help others going through our common experiences. Wishing you all the best, Lori.

Jump to this post

Replies to "@edb1123 Hi Elaine, it’s been a while since we’ve connected. The last posting you were at..."
edb1123 | @edb1123 | Feb 11, 2021

Hi, Lori:

Thanks for following up with me! I am now at Day +204 and feeling great! However, I had a major setback in late November when I developed pneumonia and acute respiratory failure. It started with a bad cough and then shortness of breath and a fever. I was hospitalized on November 24th for 17 days. I was on oxygen at home for a couple weeks and have been on Prednisone since my release to reduce the inflammation in my lungs, but they are gradually weaning me off of that.

I’m not having any symptoms anymore, but I will have a CT chest scan, pulmonary function test, and bone marrow biopsy in two weeks. My last biopsy in late December did not show ANY residual disease for the first time, so I’m hoping for this result again! 😁

Also, the doctor has discontinued the Tacrolimus, anti-rejection drug, so I can now get immunizations that were wiped away by the transplant process. I’m also trying to get the COVID vaccine as soon as possible.

This may be more information than you wanted, but that’s my update! 😁 Thanks again for your concern.

Best regards,
Elaine

VIEW AND REPLY