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Anyone had successful stem cell transplant for AML?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 2, 2022 | Replies (163)Comment receiving replies
Hi Lori! I’m sorry for the late update. Truly everything went very well and the staff was outstanding. Besides a few very tired and sleepy days, I had no other issues and was discharged from Mayo on day +13. It has been so nice to sleep in my own bed uninterrupted. My numbers continue to go up and I hope they continue to do so. My energy isn’t at all what it was before I hospitalized. I do a little and rest a little. I’ve lost almost all my hair and hope it will start growing back quickly. I’m at day 22 now and continue to go in 3 times a week with another bone marrow biopsy next week. Ugh. I know there can still be set back backs but I’m hoping they will not happen. Thank you for your support and insight through this! Gretchen
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Hi Gretchen! Happy Holidays to you and your family. Just checking in to see how you’re doing post transplant. Hope all is going well and you’re getting stronger daily! Wishing you all the best in the new year ahead. Lori.
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Hi Gretchen!! Fantastic news! What a relief. I’ve been thinking about you the past couple weeks and wondering how you’re fairing. You’re right on track now with the low energy and hair loss. That’s all reversible and just takes time. Don’t rush the progress.
You may not have setbacks. Just make sure you report anything unusual. I know you’re asked those questions each time you’re in for those critical check up appts. We joked about my team wanting to know if I had a new hangnail. Even the most trivial thing could be important.
Do you have a sedative for the biopsy? I’ve had 10 now. Three without and seven with anesthesia. That’s the only way to go! LOL. Wake up 15 minutes later to crackers and juice! ☺️ Then there’s no dread for getting the procedure. It’s a very important test. You’ll find out the percentage of your DNA to your donor. Ideally it should be 100 % donor and 0% yours. Wishing you continued success and a speedy recovery!! This is all very encouraging! Air hug!! Lori.