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@tedwueste

Brad- it’s tough to say because everyone experience is different. I dealt with severe GVHD in the first 60 and had a very rough go. And then the emotional/mental part isn’t easy. How did it feel? To give my experience - very tiring. Not a lot of strength or stamina. There were days when I didn’t want to take a shower or do just the basic walking 100 yards but most days I forced myself to do it. My wife met me where I was which I’m sure took restraint sometimes because she is a nurse. As a transplant patient - you want to get back to normal but you also don’t have as much ability to access the “want.” They say that fatigue makes cowards of us all & I think it’s because when you are so fatigued it Zappa your desire. Does it help to ask home you can best support your wife? And then just do that? You may have more “want” and desire than her right now and to you might be careful to make sure that doesn’t overwhelm her. Baby step are ok.

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Replies to "Brad- it’s tough to say because everyone experience is different. I dealt with severe GVHD in..."

Thanks so much, Ted! I appreciate your insights to help me understand! I have witnessed what you say about fatigue zapping your desire and I think that's the central problem. I can't feel what she's feeling but I'm supposed to encourage her to keep moving and she typically isn't up to it. It's a very tough road and no way to avoid the difficulty of surviving it. Thanks again!