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DiscussionAnyone had successful stem cell transplant for AML?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 2, 2022 | Replies (163)Comment receiving replies
Replies to "Ted, you have certainly been though hell so we know where you're going at the end..."
I just saw what another person posted as well. It is tough to walk through all of this and grieving is an important thing. It’s okay and an expected part of this. Another element that I’ve processed a bit is PTSD - there are often unexpected thoughts and desires that can come up. I don’t want to give “advice” per second but I can share what’s helped along the way. The integration of all the things we experience and feel is vital. I have found that writing out my story has been very therapeutic as well as staying connected relationally. Often people (people I love) haven’t known what to do so I tell them what I need: will you visit me? Can we FaceTime? That takes a little extra energy but I found that rather than being upset that people weren’t doing certain things - I would let them know. Everyone responded well. People often just don’t know how to help and might stay away for fear of saying the wrong thing.