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Anyone had successful stem cell transplant for AML?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 2, 2022 | Replies (163)Comment receiving replies
Brad, the first couple of months are not a walk on the beach by any means. I’m sure your wife is dealing with some nausea, maybe some mouth sores, unpredictable body functions, still not hungry, food doesn’t taste like anything... Please let her know and be assured yourself, that this is all part of the process. It does get better over the next few months. Make sure she stays in touch with her team to report any changes or just discuss any concerns. They are your best advocates! Also, daily temperature checks are crucial. Please don’t hesitate to reach out to this forum as well or private message me is fine too.
As for hair loss, that was from the chemo to prepare for the transplant. It will take a while, but that will come back too! This is an amazing journey she’s on. Certainly not easy but it is worth it!! A year ago I was in the same place time-wise with my transplant. It’s just incredible how resilient and strong the human body is. I feel great, as though nothing has ever happened. But I can assure you at the time, I could not have imagined that. I hope this gives you and your wife some hope. There IS a future. All the best! Stay strong, stay postive... you’ve got this!!
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Thank you! The "unpredictable body functions" rings very true. Lately, she's gone from constipation to diarrhea and back. I bought lower strength Colace (50 mg) so maybe things will smooth out. No nausea although she's got three meds for that so looks like it's expected. I assumed the problem with her gut was why she was not eating much but you're saying it's just par for the course. I think it's important for her to eat so I've been buying her favorite gelato for months just to get calories in her. At least she didn't lose weight in the hospital like they were worried about. We know it's a marathon, not a sprint, but it's still hard at the moment.
Due to the virus, I can't go in to her appointments like I've done for the past 14 years and I've alway been the vocal advocate who gets the feedback we need. Not any longer and she's struggling with her memory I'm assuming just from the stress. Anyway, yes that was awesome feedback and I really appreciate it! Today I've been sitting in my vehicle for 5 1/2 hours in what is now over 90 degree heat while she gets transfusions inside. We didn't know and I guess you never do know what's going to happen until the blood work comes back. At least I brought my laptop and can get wifi here in the parking lot.