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Losing hearing because of brain tumor
Brain Tumor | Last Active: Jul 26, 2020 | Replies (54)Comment receiving replies
Funny that you say that. My doctor said that nothing can be done. That is depressing. I can not have an mri because there is a map in my head from the surgery. Boy, I am so glad that you answered you seem very knowledgable. I have not gotten any help. Now that I know who to ask, I will ask for sure. Thank you! I live in pa and bought my hearing aid in pa and have not gotten info. My doctor in Boston last yr said that they could recamend an aid but I Had just gotton a new One so he dropped the subject? .this yr I am Going to ask what they think. Have you ever heard of an app called Ava? It was developed at mass eye and ear. No one told me about it but I started to get their news letter and read about it. It Basicly Is you or the speaker talks and it types. Is that what you mean?
Replies to "Funny that you say that. My doctor said that nothing can be done. That is depressing...."
Hi! I have gotten behind in keeping up with email so sorry to be responding only now. My bilateral ANs appeared only much later in life but I went through a period of great fear of losing my hearing, like you. Thank heavens for HLAA with its information and support where I have been an active member in the NYC Chapter. It has been incredibly helpful for me and many others. I enthusiastically endorse any recommendations here for connecting with HLAA and note there are chapters in PA and Mass which you may want to connect with. I would urge you to google Katherine Bouton of HLAA and just scroll down to enjoy taking in all the helpful information about her and hearing loss. I think her email is posted there so you could email her as well. She has written 3 books on hearing loss which tend to be very readable and often with humor. I hope you can clarify what is meant when you you can't have a MRI because there is a "map" in your head.???
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@julieo4
Hi,
I have tried AVA but didn’t care for it. Other speakers have to have it loaded onto their phone. There is an app for android phones called live transcribe and it’s free. If you have an iPhone or an android there’s another app called OTTER . Google the place store on your phone and browse through what they have. TextHear is another I have loaded when LiveTransctibe fails me (it’s WiFi dependent).
I use Live Transcribe on my Samsung all the time especially now with people wearing masks. I also use Innocaption+ for phone calls on my cell phone that allow me to hear and read what the caller is saying and has visual voice mail. I have a Captel phone for my landline .
We need a landline here because of the fax machine.
If you research and come across any apps you like or have questions please ask away. Some people have better experiences with these apps than others and I think it depends on how good the mic is on a particular phone. Don’t pay for any as there are too many free ones available.
FL Mary