Hi @uncertainsoyoung - I can just imagine how frustrating that visit with the neurologist must have been. Also, I think most of us caregivers spent a good portion of our time being "the bad guy" - so I can relate to that too. I'll share something I learned that has been very helpful in terms of doctor visits. Many times I don't want to elaborate on my husbands decline out loud in front of him. Now I summarize my observations and I write my questions out and send them to the doctor thru the portal in advance. That keeps me from having to ask the questions in front of my husband and it helps the doctor prepare. I also take an extra copy of the observations/questions to the visit so I can hand them to him if for any reason he doesn't have them on the screen. I have also written to the doctor thru the portal that I'd like to have some time alone with him before or after the visit. That's dicey because of privacy. One of our doctors allowed it - another didn't. Have you tried communicating through your portal in any way? Also, i'm interested in how you are handling your 9 year olds questions and concerns?