← Return to MAC Dr. recommendations Mayo Rochester: What to ask at first appt?

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@megan123

@n4seth....hi there...I would ask about airway clearance..do I start doing it now, and if so what do I use ie aerobika..how many times a day is recommended, and duration....also, is it too soon to be nebulizing saline 7 percent x2 a day?? Exercise is extremely important, to get the mucus out of our lungs, so as not to create an infection...there is so much more to ask, bug it sounds like you have a great start....Mayo Clinic Connect is what allows me to live a better life with all the knowledge on this forum, especially from Terry...I'm from Toronto, and we were lacking info in so many areas...Knowledge is Power..you are in the right place🇨🇦

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Replies to "@n4seth....hi there...I would ask about airway clearance..do I start doing it now, and if so what..."

Thank you Jennifer! Specific questions will really help with my conversation and I will add yours to my list. I agree that knowledge is power am I learning a lot! One week ago I was totally in the dark on this disease. I exercise regularly so I will keep that up. Have to say-I love your picture...you look healthy and happy! Nancy

Hi, Jennifer. In regards to your questions about airway clearance, has your pulmonologist not spoken to you about the avenue which is considered best for your symptoms? One can use an Aerobika, but the strength setting and frequency should be determined by your doctor. Have they measured your intake and output? Done any breathing measurements? Also, did they mention using a Smart Vest to help loosen the mucous? They should give you hands on instructions for this too, and it should be fitted and your regiment set up for you on the machine. Best wishes !!! Toni