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MAC Dr. recommendations Mayo Rochester: What to ask at first appt?
MAC & Bronchiectasis | Last Active: Dec 29, 2022 | Replies (58)Comment receiving replies
Kate, I find your words so comforting and your questions so helpful! I do have acid reflux, and swallowing problems-who knew? I'm also an avid gardener and wondering about that, but know I have to take it one step at a time. I am a cancer survivor (I hope) and two years in a row the follow-up scans showed my lungs were inflamed resulting is a referral to pulmonology. Although I had been diagnosed with asthma nine years ago, the pulmonologist knew immediately it was not asthma and did the sputum cultures which resulted in my diagnosis. I feel very fortunate that he was able to identify it. Depending on what I find out, I would love to hear more about dietary changes and supplements that you are using. It is the beginning of another journey and the calming influence of the group has already been a great support! Thank you! Nancy
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@n4seth, Don't stress because now that you've found this group...they are a FOUNT of information! I was diagnosed four years ago and took the big three antibiotics for a year and my pulmonologist believes that I got mine because of acid reflux. I'll always remember him asking me if I slept on my stomach and I said yes! I'm a stomach sleeper! When you sleep on your stomach and have acid reflux...at night those stomach acids aspirate into your lungs and you don't even realize it. So you get yourself a wedge, I bought one that was just too big and too high and I felt like I was sleeping on a mountain but then I found a really good one with a slight less of an angle on the website or catalog from Hammacher Schlemmer. And then I sleep with one or two pillows on top of that.They actually have a WHOLE mattress wedge on that website but my husband didn't much care about sleeping on an angle so I got that one person one. I highly recommend nebulizing the 7% saline solution (and trust me that came from learning on this site because my pulmonologist didn't even prescribe it at that point. I had to ask for it.) These little bugs don't like hanging around when there's a salty environment. As for dietary changes I have pretty much stopped eating dairy, hardly any wheat and I've cut back on sugar. (I'm a sugar addict so it's very hard). Hope that helps. Nan