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Scoliosis: In pain morning noon and night
Chronic Pain | Last Active: May 19, 2023 | Replies (44)Comment receiving replies
@nancyrod69 I feel you might need to see a pain doctor at Mayo and Maybe a surgeon. I have severe degeneration of my spine (no fractures though) that caused scoliosis, plus L-4,5 and S-1 has stenosis. I am going to have a fusion from T10 to my pelvis on June 9th. It's a big surgery, but I have done everything possible to now have surgery. My doctor tells me I need the surgery and the pain doctor told me there was no more she could do for me and I have done everything possible too. I have been on Tymlos for 6 weeks, which I had to be before the surgery. Bless your heart. All these meds can cause side effects. Tymlos can cause bone cancer. I am mostly osteopenia, but close to osteoporosis in places. They wanted my spine strong. They told me I had to be on it for 2 years, but the endocrinologist wants me to ask the surgeon if I can get off of it after I heal from the surgery. He doesn't think I need to be on it for 2 years. Take care and I hope you get better. My thoughts and prayers are with you.
Replies to "@nancyrod69 I feel you might need to see a pain doctor at Mayo and Maybe a..."
Thanks so much for your info lilypaws! Yes , I will discuss with my dr. further and see a pain specialist or a spinal specialist . Appreciate your prayers so much, mine are with you also!
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@lilypaws If you only have osteopenia I think they may say you can get off of Tymlos, I will be interested in hearing what they do say. My osteoporosis was neglected for five years by my local PCP after being diagnosed with osteopenia so now it is advanced osteoporosis. The endocrinologist I went to at MGH wants me on Reclast. I had planned to wait until April, after I had the MRI to detect if my liver cancer had metastasized but of course all of that has been put off. I'm doing everything I can though in the way of diet and exercise. I was very reluctant to do Reclast but at this point I just want to get something done.
@stimme I just read yesterday that it is not true that you should not take ibuprofen with COVID. I would check that though before taking it, but even if it is true I think it's only if you do have COVID. I can only take acetaminophen anyway so that's not a concern for me.
JK