@colleenyoung Treatment during this COVD19 has continued with regular appointments of blood draws, oncology office visits, and CT scans. However, Mayo Clinic in Rochester was eerily empty in comparison to a normal visit. My oncologist let me know I may not see him but another oncologist on staff when I come for treatment next month. Mayo is dividing the staff and doctors into teams and rotating work schedules so it is less likely that an entire specialty field becomes infected. Clinical trials are on hold too which worries me regarding possibly limiting options when I need a treatment change - surgery, radiation, etc. likely in May. 3 out of 4 of my last scans showed progression and if it continues in May, I ve been told we have to consider another treatment. I'm on my 3rd, 4th tier of treatment - surgeries, radiation, hormone therapies, new immunotherapies, etc. and my list of options continue to grow smaller.

However, one of the hardest things for me is deciding to travel from out of state at this time and risk exposure and the extra stress that comes from likely a treatment change in the midst of this! I have a rare cancer that cannot easily be treated or decisions made locally with a very complicated medical history. I have several high risk factors for COVD19. My anxiety over the cancer has ramped up even further with COVD19. Because of complications, I don't see any relief in site for complicated risky travel, treatment options and systems being complicated, possibly limited treatment in priority or focus, and living the future in hiding until we come up with treatments and a vaccine for COVD19.

If you're diagnosed or in treatment now, I feel it's a very difficult time on top of all the hurts that come with cancer. Don't be afraid to ask someone for help or just talk. I've been guilty of this. Everyone is coping with their own fears of COVD19 so I find myself not wanting to bother anyone. But find that someone who can listen, we're not alone in this. ❤