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@mom23boys

Does one of our Volunteer/Mentors know if these cancellations are in order to keep us safe, isolated at home, or are they to free up Medical Personnel? I've had my re-staging CT (due between March and May) approved by insurance but wondered if they would schedule it. I don't understand palstead's Brain MRI being cancelled. That would seem quite important. I know how these scans can cause much anxiety and no one wants to put them off any longer than we have to.

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Replies to "Does one of our Volunteer/Mentors know if these cancellations are in order to keep us safe,..."

I think your question is a very good one.

It is very distressing to have appointments postponed, especially without a reschedule date. At Mayo Clinic followup appointments are being either postponed or shifted to a tele-consult if no imaging is necessary.

@mom23boys to answer your question about why. You're right, it is to keep people safe and isolated at home, and to reduce the number of people in wait rooms and lobby areas to support social distancing for patients and staff. New dates will be scheduled as soon as possible. I encourage anyone who is experiencing high levels of anxiety to post a message to their team on the patient portal.
- Patient Online Services https://onlineservices.mayoclinic.org/content/staticpatient/showpage/patientonline

Your cancer care team can review your case and explain why the delay was chosen as the option for the moment. Please let them know if you need to speak with a social worker or therapist.

@mom23boys- Good morning. That's a great observation. I do believe that one of the reasons that we are being isolated is to protect us. But I also believe that it is so that other people are protected. Because of unreliable test results and lack of good tests too many people could be walking around infecting others. It's also a highly confusing time. It seems as if governmental administrators of our states don't have the proper training or resources to make medical decisions and there is also poor communications.
This just makes for a lack of accurate and science-based data and poor decisions.