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@palstead

I was supposed to have MRI-brain in April to see whether a gamma knife procedure was effective but this followup has been canceled and not rescheduled. I also am due for followup CT scans to evaluate progression/stability of stage 4 tumors throughout my body. I wasn’t diagnosed that long ago and have only had one round of chemo so I am very anxious to know the status of my disease. It’s all been canceled and I am on pins and needles not knowing what to do next or when these checkups will even be scheduled. This is so very stressful.

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Replies to "I was supposed to have MRI-brain in April to see whether a gamma knife procedure was..."

@palstead
Hang in there, palstead. While you wait (which is SO hard), meditate three times a day, and do a lot of deep-breathing when the anxiety level rises. We're all rooting for you and you will be in our prayers. Sending you blessings throughout your journey.

I’m in a similar situation. I adore Mayo but the reality is that your cancer isn’t waiting for them to sound the all-clear, which could easily be in July or later based on my conversations with Mayo MDs. I don’t know the specifics of your cancer or prognosis but I encourage you to seek out possible treatment at a cancer specialty hospital, such as Cancer Treatment Centers of America. Their guidelines for cancer treatment during this pandemic are far different than Mayo. Said differently, you are unlikely to see a delay in treatment.

Does one of our Volunteer/Mentors know if these cancellations are in order to keep us safe, isolated at home, or are they to free up Medical Personnel? I've had my re-staging CT (due between March and May) approved by insurance but wondered if they would schedule it. I don't understand palstead's Brain MRI being cancelled. That would seem quite important. I know how these scans can cause much anxiety and no one wants to put them off any longer than we have to.

Hang in there - we are with you in thought- distract yourself as best you can- meditate/ read/ garden-coloring book- something. It’s hard and my issues are less than yours - we are in this together. Distract the mind-