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@sundance6

Dadl48, So no I could not convince my PC and 7 other doctors I had it because I life in the high desert and we don't have Black leged ticks here. It finally came from my Orthopedic doc who started in medicine as a Microbiologist in the south. I see him every 60 days for a shot in my hip for burcitias. Everytime I would come in he'd asked me how I was doing and if had any of doctors I had seen had any idea what was wrong with me.
One night I watched a golf show that had Pro Golfer Jimmy Walker on. Toward the end of the show they asked him about his Lyme disease that he and his wife both had.
All of a sudden the Light Bulb went off. I imediately came up to mmy office and started reading about it. Copied off a bunch of articles about it. Went into to see my ortho guy for a shot that week and tookthe articles with me. He just smiled! He said he felt I had Lyme disease but it was out of his field at the hospital.
He said the first time I told him my symptoms he knew what it was. He also knew that the way they intially treated me with a small dose of antibiotics would cover it up. It would not show up on the blood test.
Spent the last year and a half researching it.
Something that has come to light recently is that golfers are very suseptable to Lyme Disease because we go out in the brush looking for our ball. Being in the golf business I have played in most areas of the country. Didn't realize that a pro golfer here in Albuquerque,Tim Heron, had it also.
My PC still will not admit that I have it, partly because of hospital protocal, but we've worked out where he treats the "Symptoms"! In my case Headaches and Fatigue are my Biggest problem!
I take two Oxycodone's every day and i hardly have them anymore. I've given up telling others what I take because the look at my arms for the Track Marks. Although new info I have read recently that the brusing on my arms and legs aren't from the Blood thinners I take,but now they say they are from Lyme.
My family still does not understand what it is like.
I had to take a four day business trip a couple weeks ago. It was all driving 1600 miles. Worked four stright 12 hour days. I knew what would happen and it did. I have been moreorless down since them although I'm starting to feel better. Although today I slept approx 16 hours. But I'm getting my strength back.
I don't know if you have seen but there have been two celebrities, Justin Bieber and Shania Twain who have come forward that they both have Lyme.
It helps to have some famous people come forward that has suffered from it! They try and explain it will never go away. I've found that people have different effects from it, but the headaches, fatigue and musscel soreness seemed to be comon.
Sorry for going on about it, but I truly believe it is misdiagnosed 90% of the time.
I'm sure because of it as an autoimune disease and my age puts me at higher risk for the coronavirus, I reaally don't give a Hoot!
Take Care!
Sundance(RB)

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Replies to "Dadl48, So no I could not convince my PC and 7 other doctors I had it..."

@sundance6
Yours is not an unfamiliar story. Ten or so years ago, a friend traveled in Australia and picked up Lyme disease and another virulent bacterium from the tick. She went to dozens of doctors here in California who had no idea what was wrong, and one who gave her exactly the wrong treatment. Finally, she was diagnosed correctly by the one lab in the area which knew how to test for it. In the interim, the Australia Health System was denying that it had a Lyme disease issue, and county health departments all over America were denying incidents, because, if doctors can't diagnose it and/or don't report it, then there are no county health records for it. By this time, the borreliosis had embedded itself in her connective tissue, forming shell biomes which antibiotics and other treatments couldn't break into, etc. It's a real nightmare, as you well know, and continues to be a controversial subject among some the best known researchers. My heart goes out to you on this struggle and frustration.

@sundance6 You might want to try the following links to locate a doctor specializing in Lyme. https://www.lymedisease.org/members/lyme-disease-doctors/ or https://doctor.webmd.com/find-a-doctor/condition/lyme-disease
Good Luck,
Dave, @dandl48