← Return to Klippel Feil Syndrome: Ear molds and getting a good fit

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@julieannarcand

Dear Mary; I'm grateful too!! I don't often love social media because I get stressed if I miss someone's birthday on Facebook or who knows the many things that stress me 🙂 but I truly enjoy communicating with you and I too feel a bond! Are you considered an essential worker? I'm fortunate to be considered permanently disabled ( well, I don't know how fortunate that is; but for now it is). Do you experience much pain with Klippel Feil? If so; how does it manifest? I still drive and am fortunate to have a very good relationship with my ex husband ( truly we only divorced because we both grew up in extremely dysfunctional families and just didn't know how to cope with life in general). But I have a car that has a back up camera and mirrors that blink or beeps when there is a car alongside of me. So I am very lucky there. It is raining here in the Pacific northwest as usual!! I'm waiting for a sunny day. Hope you are well and I am glad to have found you! Take good care out there, julie

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Replies to "Dear Mary; I'm grateful too!! I don't often love social media because I get stressed if..."

I bought a new car in 2018 for the reasons you mentioned. My neck is both surgically fused and pretty much “autofused” where discs are collapsed. Some days I just couldn’t turn my head/neck to check before a lane change and it got scary. It is very nice to have such safety measures!

Hi Julie, Good morning. Day to day, I’m well enough to go to work. I’m a librarian and Ohio libraries are still currently closed. Reading your earlier story, I now understand why my PCP (family doctor) just wants me to be well and never have to be on an operating table due to an illness or an accident. I posted to the moderator all of my KFS manifestations. Too groggy this morning to cut and paste. I’ll try to do that for you later. It’s cool that you can still count on your ex-husband for moral support. Cloudy here, Tree pollen count is high. Took Zyrtec last night which accounts for me “cloudiness.” Cheers, Mary