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maryella7 (@maryella7)

Klippel Feil Syndrome: Ear molds and getting a good fit

Hearing Loss | Last Active: Jun 5 9:37pm | Replies (32)

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@julieannarcand

Hi Mary; I'm glad you are able to get the things you need for your hearing! But yes, I was wondering how you were diagnosed and does it relate to Klippel Feil? Stay safe out there!

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Replies to "Hi Mary; I'm glad you are able to get the things you need for your hearing!..."

Hi Julie, I was diagnosed by a spinal surgeon 10 or 15 years ago when I was in my forties.We didn’t get to the treatment plan part. I turned tail and ran. Too afraid to face the prospect of missing work, putting others out. I inherited a workaholic credo from my family. Work over self. Sad. I hope to put that behind me. Mary

@julieannarcand
Hi,
Sorry for the misunderstanding but I don’t have Klippel Feil. I was merely responding to the posts about hearing loss and problems fitting molds.

FL Mary

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