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Small Fiber Neuropathy burning?

Neuropathy | Last Active: Dec 18, 2022 | Replies (56)

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@artscaping

Good evening @jeffrapp. I am @artscaping, and Chris. About 4 years ago, I was diagnosed by punch biopsy with Small Fiber Neuropathy with involvement in my hands, wrists, and arms as well as legs, head, and other areas. My topical was a compound including ketamine and other ingredients plus lidocaine. It came in a small jar for about $75 and worked hard to relieve the pain so that I could sleep. It also helped with issues under the heading of Chronic Myofascial Pain Syndrome or CPS. Unfortunately, the lidocaine compound worked for about 15 minutes even with the addition of other elements by my neurologist.

It was at that time that a kindly gentleman who was opening a medical marijuana dispensary sort of became my cannabis guide. He let me experiment with quite a few available topicals until we found one that was better than the lidocaine. I am still using it today and have moved through the CBD: THC ratios to the highest THC and the best option for me. It is a 1:3 CBD/THC by a company called Papa and Barkley and is $25 for a small jar.

It seems to me after tracking results, that everything I tried worked really well in the beginning. In time, I always have to up the pain ingredients, use more at any one time and more frequently. So it is not just your imagination.

Regarding the burning,,...that has been quite a hurdle to jump. Yes, my feet get red and even purple. My life partner always rubs them for me or I do a few minutes of the yoga pose, "legs up the wall". Every morning.....along with the stretches and home myofascial release therapy (MFR), I try to get ready for the day with yoga and mindful meditation. My therapist is working on the burning and suggested that I move about more. Sitting in the car for a few hours, or in a chair without lumbar support can really lite the fire in the thighs. Maybe you really took off like a rocket on that bike.

The one burn area that is a red light for me is the one behind your torso and underneath your abdomen. It reminds me of one of those gas fireplaces with low flames across the rocks. My memory tells me that the torso/abdomen pain is a bit scary.

That's an introduction.....and an update. Ask questions and I will attempt to find answers for you. Share your thoughts and suggestions.

May you be free of suffering and the causes of suffering.

Chris

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Replies to "Good evening @jeffrapp. I am @artscaping, and Chris. About 4 years ago, I was diagnosed by..."

I apologize. I did not read your whole post, but stopped at "punch biopsy". What the heck is that? I've never heard of it. I usually would talk to Mr. Google, but I'm spending too much time on here, lol. Also, I have wondered about the causes of my chronic pain. I do have some degenerative disk/nerve issues--cervical--before injections into the optical lobes of my brain, I often felt like the back of my head was going to explode. I have osteoarthritis here and there, but nothing that explains my chronic allover pain. Sometimes I feel like it would hurt if someone touched my skin, like when you have a high fever, and others my back feels like it is on fire, seriously on fire, but when a doc pushes on it no increased pain. OK, I did just read your entire post. I have never tried or been suggested to try the CBD/THC route. Guess I am still somewhat skeptical.