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Just found out I have mycobacterium abscessus!

MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)

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@erikas

@dolson0730 You are looking to connect with members that have NTM specific bacteria.

You will notice I moved your question to a discussion in the MAC & Bronchiectasis group where members like @judyhodgern @pop55 @pandora24 @rockorobin @128128terry11t are already discussing this topic. I did that so that there is a central location to discuss this topic. I know you have been part of this conversation in the past but you may want to scroll through the previous comments for suggestions, if you haven't done so already.

Below I have linked the direct link to the MAC & Bronchiectasis group. You may wish to subscribe to this lively group so you can get email notifications and updates from members.
- MAC & Bronchiectasis https://connect.mayoclinic.org/group/mac-bronchiectasis/

You asked members what members are being treated with. May I ask what treatment you are receiving?

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Replies to "@dolson0730 You are looking to connect with members that have NTM specific bacteria. You will notice..."

Hi @erikas, Thank you! NTM is short for Nontuberculous mycobacterial (NTM) lung disease is a general term for a group of disorders characterized by exposure to specific bacterial germs known as mycobacteria. The species of bacteria I have is m. abscessus, sub-species abscessus. Mycobacterium abscessus (also called M. abscessus) is a bacterium distantly related to the ones that cause tuberculosis and Hansen's Disease (Leprosy). It is part of a group of environmental mycobacteria and is found in water, soil, and dust and is a rapidly growing mycobacteria (RGM). Mycobacterium abscessus subsp abscessus is the most common respiratory pathogen among the rapidly growing non-tuberculous mycobacteria (NTM) and is also the most feared due to its well-deserved reputation for being refractory to antibiotic therapy. M. abscessus subsp abscessus has multiple innate antibiotic resistance mechanisms. This maybe more info than you want? Sorry it got long!