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Just found out I have mycobacterium abscessus!

MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)

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@poodledoc

I just came across a medical article that stated M. abscessus lung disease can actually progress slowly and not always even need treatment.
Here is a paragraph from the article "M. abscessus lung disease may progress very slowly; furthermore, some patients do not require treatment, whereas others require combination antibiotic therapy, including parenteral agents. After discussing this information with the patients, we implemented an observation period of at least 6 to 12 months without antibiotic treatment. When the disease was clearly recognized as being progressive, the patients received a standardized combination antibiotic therapy after hospitalization. In patients with substantial symptoms and/or advanced or progressive radiographic abnormalities, antibiotic therapy was initiated immediately"
The full article can be viewed here https://www.atsjournals.org/doi/full/10.1164/rccm.200905-0704OC

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Replies to "I just came across a medical article that stated M. abscessus lung disease can actually progress..."

Thank you for reminding us of that article. It is a great reminder of what my ID doc says "Mycobacteria is slow to grow and slow to go" - this is generally true of MAC, abscessus, even TB - which is why, in addition to antibiotic resistance, it is so difficult to treat.

The introduction of Arikayce (inhaled Amikacin) has made some doctors more willing to initiate treatment of M. abscessus, but I think many still watch and wait.

All of these considerations are why it is so important to find a care team be experienced in managing NTM.

Sue