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Just found out I have mycobacterium abscessus!

MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)

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@pop55

No I don't know what subspecies yet but I am waiting for the sensitivity testing to come back, hopefully next week. Just praying its not resistant to the Macrolide. Right now my Dr said I am stable so I am not being treated. Can you get up enough sputum for a culture on your own so you won't need a bronchoscopy? Here is another great video of Dr Daley. https://www.youtube.com/watch?v=jHkF-8oqoTo&feature=emb_title. I have learned so much from watching his video's.

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Replies to "No I don't know what subspecies yet but I am waiting for the sensitivity testing to..."

Hi -- So it sounds like we are in the same boat......both waiting to find out which subspecies we have. Apparently, only one of the three subspecies is easily treatable, and that's massiliense. I'm going to cry if I find out I have one of the other two, abscessus or boletii !! However, I'm pretty stable too, feel generally ok so far, and have been told that I've already had this for at least a year, if not longer. Don't know how many colonies I have, I guess maybe a couple, because she showed me two areas on my CT scan... The problem is that I can't cough at all!! (probably a good thing), so in order to find out what I've got, I must do Bronchoscopy #2. My big question is, should I bother doing it if I'm stable? Maybe I'll be one of those people who walk around with this and it never bothers me! But I would still love to get rid of it..................I live in New Haven, CT, so my doctors are at Yale New Haven medical center.....however, they said they will send my next sputum to a state of the art lab in Colorado! Thanks for the new Dr. Daley video. You are right --he is terrific! Keep me posted -- I'm praying that you don't have a "bad" one! (They're all bad...)