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Just found out I have mycobacterium abscessus!

MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)

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@pandora24

Hi @pop55 - thanks so much for sending that great video! It really explained a lot. No, unfortunately I don't know which type of abscessus I have, because the lab didn't bother to find that out, just as it's stated in the video. So now I'm faced with doing a second bronchoscopy so they can do it right and find out my subculture. What a ridiculous system! I don't think I have any symptoms to speak of, so far.......I'm not coughing, or losing weight, or fatigued, so I really don't know yet if my doctor will say I should treat this or not...........depends on the subculture, I guess.....amongst other things..........how about you? Do you know which subculture you have? Are you being treated?

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Replies to "Hi @pop55 - thanks so much for sending that great video! It really explained a lot...."

No I don't know what subspecies yet but I am waiting for the sensitivity testing to come back, hopefully next week. Just praying its not resistant to the Macrolide. Right now my Dr said I am stable so I am not being treated. Can you get up enough sputum for a culture on your own so you won't need a bronchoscopy? Here is another great video of Dr Daley. https://www.youtube.com/watch?v=jHkF-8oqoTo&feature=emb_title. I have learned so much from watching his video's.