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Just found out I have mycobacterium abscessus!

MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)

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@judyhodgern

Hi Pandora! Welcome!! Learning about your disease to advocate for ourselves with Our doctors that May not know all the ins and outs of it. I had abscesses-with sub species “abscesses“ My doctor knew how to treat it specifically.
Abscessus is a tough mycobacterium and I have had several Oral and IV treatments Over last 2 years. I think I may be free of abscesses now—-my doctor knew the treatments For my subspecies and Knowing the culture and its sensitivities ——-that are “so” important to find best antibiotic to use. I was coughing and feeling terrible I feel much better now. The Best to you! Judy

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Replies to "Hi Pandora! Welcome!! Learning about your disease to advocate for ourselves with Our doctors that May..."

Thank you, Judy, for that information. It's GREAT to hear that you are recovering from the subspecies "abscessus" because that's supposed to be one of the hardest ones to treat! That's wonderful to hear....best of luck to you!

Thank you Judy for the positive post! You are definitely a beacon of hope for others. I am so glad that you are feeling so much better.