Hi Pandora! Welcome!! Learning about your disease to advocate for ourselves with Our doctors that May not know all the ins and outs of it. I had abscesses-with sub species “abscesses“ My doctor knew how to treat it specifically.
Abscessus is a tough mycobacterium and I have had several Oral and IV treatments Over last 2 years. I think I may be free of abscesses now—-my doctor knew the treatments For my subspecies and Knowing the culture and its sensitivities ——-that are “so” important to find best antibiotic to use. I was coughing and feeling terrible I feel much better now. The Best to you! Judy

Hi @pop55 - thanks so much for sending that great video! It really explained a lot. No, unfortunately I don't know which type of abscessus I have, because the lab didn't bother to find that out, just as it's stated in the video. So now I'm faced with doing a second bronchoscopy so they can do it right and find out my subculture. What a ridiculous system! I don't think I have any symptoms to speak of, so far.......I'm not coughing, or losing weight, or fatigued, so I really don't know yet if my doctor will say I should treat this or not...........depends on the subculture, I guess.....amongst other things..........how about you? Do you know which subculture you have? Are you being treated?

That was an excellent video. I think I will have my next sputem test sent to NJH, I don't think my mac was ever gene sequenced.