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Just found out I have mycobacterium abscessus!
MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)Comment receiving replies
Welcome to Mayo Clinic Connect, @pop55. You'll notice that I moved your message to this existing discussion called "Just found out I have mycobacterium abscessus!" I did this so you can connect with others who have experience with m. abscessus, like @jammer @128128terry11t @nannette @dolson0730 @poodledoc @judyhodgern and others. If you click VIEW & REPLY in the email notification, you can scroll through the past messages, including some great videos.
Pop55, how are you feeling about not going on treatment at this time?
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Thank you! I have found a great DR in my area on NTM..org. Its a very scary diagnosis and the treatment sounds terrible. I am hoping to find someone else who has experience with M abscesses and hear what they did. I am also trying to get a consult at National Jewish before I jump into treatment.