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Just found out I have mycobacterium abscessus!

MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)
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@pop55

I have had 3 recent positive cultures for M abscesses. My Dr is holding off on treatment for now as I am stable and have no real symptoms yet. I have had bronchiectasis since 2007 but had not had a sputum culture until March this year. Looking to see if anyone else in the group has M abscesses and if you had treatment.

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Replies to "I have had 3 recent positive cultures for M abscesses. My Dr is holding off on..."
Colleen Young, Connect Director | @colleenyoung | Aug 30, 2020

Welcome to Mayo Clinic Connect, @pop55. You'll notice that I moved your message to this existing discussion called "Just found out I have mycobacterium abscessus!" I did this so you can connect with others who have experience with m. abscessus, like @jammer @128128terry11t @nannette @dolson0730 @poodledoc @judyhodgern and others. If you click VIEW & REPLY in the email notification, you can scroll through the past messages, including some great videos.

Pop55, how are you feeling about not going on treatment at this time?

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pandora24 | @pandora24 | Sep 13, 2020

Hi pop55! I'm new on this forum as well, and have also been diagnosed in August with M. Abscessus. My doctor has initially indicated holding off on treatment, but strangely, since I had a bronchoscopy, I've started feeling quite sick--deeply fatigued, and with a weird general overall "sick" feeling, with chest tightness. I'm beginning to think I want to do the treatment, no matter how bad it is, because currently I have no energy to enjoy life, and I figure it's better to get it done sooner rather than later....

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