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Just found out I have mycobacterium abscessus!
MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)Comment receiving replies
@terryb1 One, M gordonae, continues to be present in small numbers and the ID doc, in consultation with NJH, says they are not significant. 2 others (I forget which) each only appeared once, in small numbers, then disappeared. One was though to be a contaminated specimen because of 3 taken and tested the same week, it only appeared in one.
I like that you have a plan for retesting - and that you are dealing with the best experts.
Do you nebulize and use an airway clearance device regularly? I feel that really helps keep my sputum thin & clear.
Sue
Replies to "@terryb1 One, M gordonae, continues to be present in small numbers and the ID doc, in..."
Sue. Do you spit out more sputum on some days than others? After nebulizing? Usually mine is clear and foamy looking but sometimes, like I have mentioned before, little light yellow clumps? NJH accepted me so they will be calling me next week for phone interview, and then begin the scheduling process. I have to fly from Blue Ridge Georgia to Denver. The fear of all of this is paralyzing….I have yet to meet face to face with experts to help me. I,pray to God NJH will. Any thoughts?
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@sueinmn @terryb1 I have just had gordonae show up also, but as sue says my Dr thinks it will just go as small amount probs contaminated specimen.