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jammer (@jammer)

Just found out I have mycobacterium abscessus!

MAC & Bronchiectasis | Last Active: Aug 7, 2021 | Replies (110)

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@128128terry11t

I am so grateful for this helpful compilation. I remember Kathryn but did not remember that she had abscessus. Every time I say "phooey" I think of her. These replies have lessened my fear and anxiety significantly. Reading that I grew out abscessus other than MAI had me in quite a tailspin. Thank you.
Forgot to ask @sueinmn: did the different mycobacteria's numbers stay small; did they disappear completely, or grow larger? Did the doctor say what some of the reasons for the positive cultures were? Thank you both again.

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Replies to "I am so grateful for this helpful compilation. I remember Kathryn but did not remember that..."

@terryb1 One, M gordonae, continues to be present in small numbers and the ID doc, in consultation with NJH, says they are not significant. 2 others (I forget which) each only appeared once, in small numbers, then disappeared. One was though to be a contaminated specimen because of 3 taken and tested the same week, it only appeared in one.
I like that you have a plan for retesting – and that you are dealing with the best experts.
Do you nebulize and use an airway clearance device regularly? I feel that really helps keep my sputum thin & clear.
Sue

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