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jammer (@jammer)

Just found out I have mycobacterium abscessus!

MAC & Bronchiectasis | Last Active: Aug 7 9:31pm | Replies (110)

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@sueinmn

@jammer I am glad you have an appointment soon. I think you should try to keep it, because in addition to the M abscessus, the anxiety of the situation can be very trying. Are you having symptoms? Are you currently using any nebs or lung clearance techniques?
Sue

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Replies to "@jammer I am glad you have an appointment soon. I think you should try to keep..."

I too have been diagnosed with Mycrobacterium Abscessus. I am currently being treated by U of MN Infectious Disease Dr. started on Iv infusions of Amikacyn once a day, Tigecycline 2 infusions daily & Linezolid orally twice a day. Linezolid made me very, very sick. Dr finally took me off it and I continue with the infusions everyday. It’s been 2&1/2 months so far of twice daily infusions. I Nebulizer 3% saline, which doesn’t produce for me in airway clearance, am waiting for a prescription for 7% & hoping I can be more productive with this. I Nebulize once a day. I’ve not seen a respiratory therapist to help me with this & hope I’m doing it right. Maybe when Covid is over I can receive this assistance. Any advice is appreciated.

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