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jammer (@jammer)

Just found out I have mycobacterium abscessus!

MAC & Bronchiectasis | Last Active: Aug 7, 2021 | Replies (110)

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@jammer

Original diagnosis was Gordonae that was 18 months ago, now the new diagnosis of adscessus. I am reading that adscessus is a lot more fast growing. I was on the "big 3" for the 18 months, my dr. took me off 6 weeks ago. I did not agree with my local dr. so I went back to Mayo and found out about the new diagnosis. I will not find out what treatment they will have me on until April 3rd when I return back to Mayo.

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Replies to "Original diagnosis was Gordonae that was 18 months ago, now the new diagnosis of adscessus. I..."

@jammer I am glad you have an appointment soon. I think you should try to keep it, because in addition to the M abscessus, the anxiety of the situation can be very trying. Are you having symptoms? Are you currently using any nebs or lung clearance techniques?
Sue

@jammer May I ask which dr you are seeing at Mayo on your upcoming visit?

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